It was a busy week-end for us , with an HD education day on Saturday morning in Chapel Hill and mothers day events Saturday afternoon in Angier and Sunday in Martin county.
Saturday morning VJ & I attended a HD event in Chapel hill, we could only stay until lunch , but we got to catch up with some folks from the HD community we had not seen for a while. We also were able to catch the the morning speaker Ken Serbin alias Gene Veritas Huntington disease blogger. Ken had good presentation on the current state of Huntington from a global perspective , Who the player are and what are some of the major happening in research . Ken ask the question were are the people ? why is this room not full ( we had small turn out)? One of the issues in the Huntington community is lack of awareness &and understanding of the disease. The morning topics also included advocacy on HR 718 &and S 648 ; and how to talk to your doctor . We were not able to stay for the afternoon . I will follow Ken's blog starting today curehd.blogspot.com
Vj continues to hold her own , balance is gone and her speech is not what it was last year this time. She maintain the good attitude and had shed completely the stigma she had of HD . I heard her talking to someone the other day and she told tell a lie and later she said to me, I lied to her and I don't know why . I continue to see small things like this come out ??
We had a Gardner mother's day event in Angier , with a good turn out , I saw some of my relative I had not seen in years and Mom was in her element , she had a large # of her family around her and there was lots of great food and conversation . There is some friction with aunt Helen's children , she was not there nor were any of them . Not sure the problem but it is a shame. It is close kin to my youngest son's anger right now with me , not sure the issue , but i have faith he will come around. The food was outstanding and I over ate .
The Wynn mother day was on Sunday in Williamston which is two hours in the other direction. We meet at a restaurant and had the table for 45 minutes and that had to get out , long table with out much opportunity for conversation except with the person in front or beside you . Vj didn't want to go to her mom's after lunch so we drove back home.
We have had some development on the house, and I think we can sell it if we are willing to owner finance and under the right condition we will do it , but we have a lot of work to do before we can make it happen . We will see ??
Golf game has been good .
Life is good!!
Saturday morning VJ & I attended a HD event in Chapel hill, we could only stay until lunch , but we got to catch up with some folks from the HD community we had not seen for a while. We also were able to catch the the morning speaker Ken Serbin alias Gene Veritas Huntington disease blogger. Ken had good presentation on the current state of Huntington from a global perspective , Who the player are and what are some of the major happening in research . Ken ask the question were are the people ? why is this room not full ( we had small turn out)? One of the issues in the Huntington community is lack of awareness &and understanding of the disease. The morning topics also included advocacy on HR 718 &and S 648 ; and how to talk to your doctor . We were not able to stay for the afternoon . I will follow Ken's blog starting today curehd.blogspot.com
Vj continues to hold her own , balance is gone and her speech is not what it was last year this time. She maintain the good attitude and had shed completely the stigma she had of HD . I heard her talking to someone the other day and she told tell a lie and later she said to me, I lied to her and I don't know why . I continue to see small things like this come out ??
The Wynn mother day was on Sunday in Williamston which is two hours in the other direction. We meet at a restaurant and had the table for 45 minutes and that had to get out , long table with out much opportunity for conversation except with the person in front or beside you . Vj didn't want to go to her mom's after lunch so we drove back home.
We have had some development on the house, and I think we can sell it if we are willing to owner finance and under the right condition we will do it , but we have a lot of work to do before we can make it happen . We will see ??
Golf game has been good .
Life is good!!
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