Memorial Day : God bless America and all the men & woman who are serving or have served this country . I saw a fellow names Hayes on MSNBC this  morning who claimed to a have problem calling fallen american service men/woman hero because it would seem to promote war or I think that was his point . I would like to drop his ass in a VFW or American legion hut in anywhere USA and ask him to explain his position .  Or better yet leave him in a hot war zone for 30 days and see if he has a change of heart .

Vj is having problem with here teeth and our dentist don't have an answer and she has consulted with a specialist who could not offer a answer   . The problem has several causes the first being she can not floss her teeth  , because she does not have the control over  her  movements to be able to hold or manipulate the floss . Several years ago she switch to an electric tooth brush , but  that is difficult for her. The other issue , her tongue is constantly moving pushing against her lower front teeth.  I need to do some research on this problem. I am going to contact Sara at the NC-Huntington organization to see if this issue has been addressed at some point .HD has some many issues and they are so different is different  people.

We had the Stewart and Ms Howell  over for dinner last night , the first entertaining we have done in several years. Vj seem to have  great time and was able to enjoy the small group and while she did not take a active part in the after dinner conversation she did participate .  My Rib turned out good and I had the kitchen clean before  I retired for the evening .

Meet with F/T and we are making some progress toward Charleston.

Golf two days last week played well weather was great,the weather is iffy this week with a tropical storm banging around in norther FL. We will see were it goes and go with he flow

The gardenias outside my window are in full bloom this week, it look like a white carpet. The bloom only last for a short time but they are great to look at and the smell from all those flower is wonderful.

I have located a radio station on the web that stream blues 24/7 and it makes any task at this lap top easy   (WGLT) somewhere in IL .

Life is Good !

I have spent the last few hours cleaning up my desk of trash, clutter and paying bills . While paying our bill ,  I was in the process of entering  our annual payment to AAA and realized there were two card one for me and one for VJ . She has not driven in several years and we only have one car so I was able to save a few buck. My point is I need to look a the rest of our business to make sure we are not paying for something out of habit that VJ no longer needs.

I have a trust set up for VJ in the event something happen to me with the trust department at my former employer. They will manage her money and make sure she is looked  after .  During my career I saw so many folk ripped off by friend and family  I decided to use a third party . The cost is not bad since I get the a discount for the service.
I think one of the big issues faced by HD families is financial and I am not sure we are addressing that issue beyond the push for SSI issue. I know I am so busy with life,family and VJ I don't think about other folk issues. I think it is an issue that maybe should be address by the state & national chapter.

The folk next door have teenage daughter who will be a working at a summer camp on lake Norman and she need to get a little  time on the water  so I have agree to take her out tomorrow afternoon so she can get a little time at the helm of a boat .Should be an interesting afternoon . I think she is  level head kid so it should be fine.

Sore foot no golf .

Life is good !
  

It was a busy week-end for us , with an HD education day on Saturday morning in Chapel Hill and mothers day events Saturday afternoon in Angier and Sunday in Martin county.

Saturday morning VJ & I attended a HD event in Chapel hill, we could only stay until lunch , but we got to catch up  with some folks from the HD community  we had not seen for a while. We also were  able to catch the the morning speaker Ken Serbin alias Gene Veritas  Huntington disease blogger. Ken had good presentation on the current state of Huntington from a global perspective , Who the player are and what are some of the major happening in  research . Ken ask the question were are the people ? why is this room not full ( we had  small turn out)? One of the issues in the Huntington community is lack of awareness &and understanding of the disease. The morning  topics also included  advocacy on HR 718 &and  S 648 ; and how to talk to your doctor . We were not able to stay for the afternoon . I will follow Ken's blog starting today curehd.blogspot.com

Vj continues to hold her own , balance is gone and her speech is not what it was last year this time. She maintain the good attitude and had shed completely the stigma she had of HD . I heard her talking to someone the other day and she told tell a lie and later she said to me, I lied to her and I don't know why . I continue to see small things like this come out ??

We had a Gardner mother's day event in Angier , with a good turn out , I saw some of my relative I had not seen in years and Mom was in her element , she had a large # of her family around her and there was lots of great food and conversation . There is some friction with aunt Helen's children , she was not there nor were any of them . Not sure the problem but it is a shame. It is close kin to my youngest son's  anger right now with me , not sure the issue  , but i have faith he will come around. The food was outstanding and I over ate .

The Wynn mother day was on Sunday in Williamston which is two hours in the other direction. We meet at a restaurant and  had the table for 45 minutes and that had to get out , long table with out much opportunity for conversation except with the person in front or beside you . Vj didn't want to go to her mom's after lunch so we drove back home.

We have had some development on the house, and I think we can sell it if we are willing to owner finance and under the right condition we will do it , but we have a lot of work to do before we can make it happen . We will see ??

Golf game has been good .

Life is good!!