TGIF

The week has been busy , glad i get to catch up at home. There is also a little activity on the Huntington front. The NC-CHD has hired our first social worker, who will began work right away. I think this should motivate us to get busy on the fund rising project. The national organization has set march 18Th as a legislative call day in Washington DC, they have ask about 75 people who live within driving distance to attend. I am not sure if i can make it work yet.We received registration information for the national HDSA convention which will be held in Raleigh in June . VJ has agree to attend so i am going to register.
We were at the physical rehab center yesterday for an evaluation and will start rehab on Monday. We must improved VJ mobility . VJ still has the great attitude , but she does wind down quick and some time i have to insist she get dressed and out of the house , but she is a warrior .

SJ and the boy will come in Sunday if the weather don't close them down. This has been a wet cold and now snowy season. The bird are eating the seed i put out very quickly , but me and Mr Cat do enjoy watching.

We had two interview for the CEO position at the hospital and both are very good candidates, we will talk to one more and try to reach a decision. We need to get this behind us asap. In a meeting to discuss the hospice construction , i offer my thought on what i think is the proper way to handle a RFP bid process and i am not sure i should be in the process at all. I think it is an indication of the leadership vacuum that exits, which is another reason we need to move to hire the new CEO asap.

I read Harlan Coben "long lost" and the plot of the book is in part based on a on a man who discovery he has Huntington and what happen after. This is the first book(fiction) i have ever read that deals with Huntington , i hope that means we are gaining some traction in getting the word out on this issue.

Time for more coffee and the rest of what has piled up on this desk.

Life is good!