Great morning the rain has passed and it is good to be up and feeling better. Up early made a little breakfast , played with my friend the cat , touched a few friend on e-mail who i know were not moving at that time.
Busy this week and next is not looking much better . Someone ask me yesterday how much i was paid for the various stuff i am into and of course the answer is not much , but if i did not keep busy i don't think life would be as good. The other thing i don't say when folk ask me something like that is 1. I need the time out of the house and 2. it will not be long before i will not have the freedom to be engaged in outside activities.
Vickie ask me this week if i remember the HCHD chapter meeting last fall , when we went to different breakout session and she was in a group with Other folks who have Huntington's. She said there was a woman in the group with advanced HD, who's speech was not understandable. She said Sammy i hope i don't ever get that bad. I told her not to worry about that , keep the good attitude and we would continue to look for opportunity to engage in new trials and protocols. She is a real trooper and has great courage.
We are still trying to rise money to get the NC-CCHD up and going , I think there may be a need for our board to bring more focus to the process.
Life is good!
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