I had lunch today with a friend to discuss fundraising for the COE and a general visit. He is the person who insisted vickie see a neurologist after she totaled the BMW.He is also the one who attenpted to help us find a consular who had HD experience, without success.
He said while in medical school all residents were told there was a patient in the hospital with a rare disease ,Huntington's. There was a call meeting for all to see this patient who was on a stage in a chair. He said he didn't expect he would ever see a another HD patient.
He told me today he had a patient in his office recently who he had seen before. He ask the patient if he had ever talked to anyone about his movements, his wife spoke up and said no one had ever brought it up and she thanked DR K for doing so. The patient was referred and found to have HD.I am convinced there is much more HD out there than we think.
Listen to the radio this afternoon and heard a guy commit professional suicide, it was sad to hear. Smart Guy , but it sounds to me like he is looking into the abyss and this was a desperate cry for , I don't know what .
Out to dinner with the wife.
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