I am trying to help rise money to fund the NC center for the care of Huntington's disease.At the same time i have a request on my desk to become involved with the local hospital foundation and every day we received request from friend in the community to support a project or cause they think is important , all very worth while.
I am coming to the conclusion since we have only limited $$ these $$ will go to local HD needs. I am now active in a # of local civic activities which i will move away from over the next few year or as needed to care for Vickie and become more involved in the HD community .
If we can get enough people moving together the NC-CCHD will be a success and have a positive impact on the HD families in this state.
The national convention coming to Raleigh next year will be a big boast for HD awareness in the triangle and NC.
Asking folks to give money to a cause they are not aware of or understand is not successful in most cases unless the person asking has passion for the cause. Who has more passion than those of us who live with HD every day. We must all be warriors for the cause .
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