Duke Day

We spent most of yesterday with the good folks at Duke University health system . Vickie has volunteer to participate in the phase three clinical trials for Dimebon. The trial will run for six months . This will require a visit back to Duke once per month for the duration of the trials. At the end of the trials if the results are positive , Vickie will receive the drug (free) until final approval by the FDA . Vickie was required to give a blood sample which she does not like to do , but she came Thur like the real trooper she is. She also received BASIC physical including EGK .

The other research trial we both enrolled in is the Cohort (cooperative Huntington's Observational research Trial) WOW now i know why they are using acronyms. This study track a patient and the caregiver .This trial starts with a length questionnaire and neurological exam for both of us . This was followed with a basic exam from Dr Scott for both of us .We were send home with a Family History Questionnaire for Vickie, I will complete that with Shirley and Esther's help .

The Staff is great Sara & Peggy make Vickie very comfortable , which is a great help. Dr Scott is also easy to work with. He is low key , but i saw he can be firm when needs to be.
We ended the day at my mother table which is always a treat and back home .